BridgeBio and Community Partners Launch Nationwide ATTR-CM Education Effort Ahead of World Amyloidosis Day

Kevin Kwaku, President of the Association of Black Cardiologists

“ATTR-CM deserves greater attention as part of the cardiovascular health conversation, particularly for Black Americans who may be at increased risk. We’re proud to support BridgeBio in helping patients, families and healthcare professionals recognize when there may be more to a heart failure diagnosis”

Uma Sinha, Chief Scientific Officer at BridgeBio

“Approximately 1 in 25 Black Americans carries a genetic variant associated with ATTR-CM, and too often the diagnosis comes only after the heart has already been significantly affected.”

Uma Sinha, Chief Scientific Officer at BridgeBio

“Our understanding of this progressive disease has moved faster than awareness of it. Shortness of breath, fatigue, and carpal tunnel in both wrists can be written off as aging or as a more common form of heart failure, and years can pass before anyone names the real cause. Putting clinicians, cultural leaders and Howard 'H' White's lived experience in the same room, alongside partners rooted in these communities, is how we close this gap.”

Olajide Williams, Founder and Board Chair of Hip Hop Public Health

“At Hip Hop Public Health, we know that people are more likely to engage with health information when it is relevant to their lives and delivered through voices and cultural touchpoints they trust. Our goal is to make these conversations accessible and actionable, so people feel empowered to recognize changes in their health, ask questions and advocate for themselves and their families”

Albert J. Hicks III, Director of Cardiopulmonary Care and Heart/Lung Transplant at Integris Baptist Medical Center in Oklahoma

“ATTR-CM can hide in plain sight because its symptoms often mirror heart failure we see every day. For Black patients, particularly those with ancestry-linked risk, knowing when to look beyond the familiar diagnosis can change the course of the disease”